Friday, January 30, 2009

Update and a tidbit on prayer

Hi Everyone,
I am home from the MICU at Brigham and Women's Hospital. I went in on Wednesday and spent the night (to reserve the bed) and started treatment on Thursday at around 12:30 so I was there at the hospital until around 11:00 pm. The desensitization went very well - I only had one reaction to the drug which they treated with benedryl. It was very peaceful. A sister came to visit in the afternoon which helped pass the time and Paul came in the evening. I was pretty sleepy from the drugs so I slept a lot as well. The nurse I had was amazing. At one point she and the allergy fellow came in and we were talking about weddings - they are both engaged and I have had a lot of experience recently researching wedding venues, caterers etc. so I mentioned a few things and the allergy fellow started taking notes! That's a first! It was fun to be on the "expert" side of things for a change.....anyway my CA 125 went down a bit from 62 to 58 - which is a small amount but still moving in the right direction. I am feeling somewhat nauseous right now but trying to rest. I just wanted to give you all an update. Please pray that I am able to keep hydrated and also that the side effects from the chemo (especially neuropathy in my hands and feet) do not increase as this may mean that I cannot continue the drugs. The Lord knows.

When I was in the ICU it was hard to sleep. I woke up around 4:30 and enjoyed spending time in prayer with the Lord and also enjoyed reading through the first 8 chapters of Matthew. It was so very refreshing. In these chapters were the verses that are traditionally called the Lord's Prayer. Really the Lord is setting down some principles of prayer. I read something from the second chapter of the book The Prayer Ministry of the Church by Watchmen Nee that comments on this matter. I hope you get as much help from it as I did. You can read the entire chapter at http://www.ministrybooks.org/books.cfm?id=%23.%3EOL%0A - and click on chapter 2.

The prayer here is “Your will be done, as in heaven, so also on earth.” This shows that God’s will is done in heaven, but that it is not fully done on earth. God is God; who can stop His will from being done? Can man stop God? Can the devil stop God? No one can stop God. Why then do we have to pray? To answer this question, we have to mention something about the principle of prayer.

In the whole Bible, there are a few basic principles concerning the truth. The principle of prayer is one of these principles. Brothers and sisters, we have to realize that it is wonderful that such a thing as prayer can exist in the Bible. God truly knows our need already. Why then do we need to pray? In man’s view, since God is omniscient, there is no need for man to pray. Yet according to the Bible, God needs man’s prayer. Prayer means that God wants to do something, yet He will not do it Himself; He will wait for man on earth to pray about it before He does it. God has His will and thoughts. Yet He is waiting for man to pray. God knows our needs, yet He has to wait for man to pray before He will do anything. He will not move by Himself; He will move only after man has prayed. The reason that we need to pray is because God will not do anything by Himself; He has to wait for man to pray before He works. The Lord Jesus was to be born. But there needed to be a Simeon and an Anna to pray for this (Luke 2:25, 36-38). The Holy Spirit was to descend, but it could not descend until the hundred and twenty people prayed for ten days (Acts 1:15; 2:1-2). This is the principle of prayer. Can we through prayer ask God not to do what He wants? No, we cannot. Yet God has to wait for us to pray before He can do what He wants to do. At the time of Ahab, the word of Jehovah came to Elijah clearly, “I will send rain upon the earth.” But Elijah had to pray before God would send the rain (1 Kings 18:1, 41-45). God will not carry out His will alone. He has to wait for us to pray before He will carry out His will. What is prayer? It is first for God to have a will, second for us to touch this will and pray for it, and third for God to answer our prayer when we pray.

Many people have the wrong concept that the reason man prays to God is to initiate something and ask God to do something. But the Bible shows us that God first has a will and wants to do something, next He shows us His will, and then we speak out with our mouth the will that we have come to understand. This is prayer. The Lord taught us to pray. God Himself wants His name to be sanctified. God Himself wants His kingdom to come, and God Himself wants His will to be done on earth. Yet God will not do these things alone. He is waiting for the church to pray. If you pray, I pray, and all of God’s children pray and if the prayers are numerous enough, His name will be sanctified, His kingdom will come, and His will will be done on earth as it is in heaven. God’s children must learn to pray this kind of prayer. We have to always remember what God desires and what He wants to do. Although God has determined to do something, He will not do it; He has to wait for His children to be motivated and willing to express His will through their prayer before He will answer their prayer. Although the ultimate fulfillment of His name being sanctified, His kingdom coming, and His will being done on earth will be in the millennium, the timing of it, whether it will come early or late, depends on the prayer of His children. The basic principle is that God will not do anything according to His purpose alone; He will wait for His children to pray on earth before He does anything.

Some matters can be considered only miscellaneous matters in God’s will. But God has a very great will, and the miscellaneous matters of His will are included in this great will. When we pay attention to God’s great will, all the miscellaneous matters will be accomplished. God has His will in heaven, and His Spirit conveys this will to us. Therefore, we can echo with the cry, “God, we ask that You accomplish this.” When this happens, God accomplishes His will. This is the principle of prayer as revealed in the Bible. God’s move today is affected by our prayer on earth. We have to ask God to open our eyes so that we can see that the move in heaven is affected by our prayer on earth. Our Lord has revealed this mystery to us which was hidden from the ages. Brothers and sisters, if we are willing to make a sacrifice and set aside the time to pray, we will see that this kind of prayer will not only receive God’s answer but will also receive a reward.

God’s will is like a river, and our prayer is like the channel. If our prayer is big, the accomplishment of our prayer will also be big. If our prayer is limited, the accomplishment of our prayer will also be limited. The revival in Wales during 1903-1904 was the greatest revival in the history of the church. God brought in a great revival through a coal miner, Evan Roberts. He did not have much education. But his prayers were profound. Later he did not engage in any public work for seven or eight years. When a brother met him, the brother asked, “What have you been doing all these years?” He answered with one short sentence, “I have been praying the prayer of the kingdom.” Brothers and sisters, if there is no prayer, the kingdom will not come. If the channels are blocked, the water cannot flow through. In teaching us to pray, the Lord revealed God’s mind and God’s demand on us. Whenever God’s children place their will in harmony with God’s will, God’s name will be sanctified, His kingdom will surely come, and His will will indeed be done on earth as in heaven.


Lord, harmonize our will with Yours.

Much love dear ones,
Joanne

Friday, January 23, 2009

Follow-up on allergic reaction

Hi Everyone,
Yesterday I met with Dr. Mariana Castels who is an allergy/immunology specialist at BWH. She has developed a desensitization protocol for cancer patients who develop an allergic reaction to the chemo drug (usually after 6-8 rounds). I was tested yesterday and I am indeed allergic to carboplatin. So next week, when I have the next round of chemo I will go into Brigham and Women's Intensive Care Unit and have the drug administered over 6 hours. Apparently Dr. Castels has developed this protocol - and 3 years ago it was not possible to continue treatment if an allergy developed. I am so thankful that I will be able to finish the chemo since it is working.

These past few weeks have been difficult - I have felt really isolated and lonely - and sort of useless. But when I cry out to the Lord, He faithfully supplies according to His riches in glory - sometimes with a hymn or verses or with refreshing visits from dear ones. Today I enjoyed a refreshing visit and this wonderful hymn by A.B. Simpson:

1 I'll sing of the wonderful promise
That Jesus has given to me;
"My strength is made perfect in weakness,
My grace is sufficient for thee."
And lest my poor heart should forget it,
Or ever forgetful should be,
He still keeps repeating the promise,
My grace is sufficient for thee.

Yes, over and over and over,
My Savior keeps saying to me;
My strength is made perfect in weakness,
My grace is sufficient for thee.

2 His grace is sufficient to save me,
And cleanse me from guilt and from sin;
Sufficient to sanctify wholly,
And give me His Spirit within.
His grace is sufficient for trials,
No matter how hard they may be,
This promise stands over against them,
My grace is sufficient for thee.

3 His grace is sufficient for sickness,
Sustaining and making me whole;
His grace is sufficient when sorrows
Like billows roll over the soul.
His grace is sufficient for service,
It sets us from selfishness free,
And sends us to tell to the tried ones,
His grace is sufficient for thee.

4 His grace is sufficient to live by,
And should we be summoned to die
'Twill light up the valley of shadows,
And bear us away to Him nigh.
Or when we shall stand in His vict'ry,
And Christ in His glory shall see,
We'll fall at His footstool confessing,
Thy grace was sufficient for me.

5 It is not our grace that's sufficient,
But His grace, it ever must be:
Our graces are transient and changing;
His grace is unfailing as He.
And so I am ever repeating
His wonderful promise to me,
My strength is made perfect in weakness,
My grace is sufficient for thee.


It is wonderful that His grace is unfailing - as He is....

Much love,
Joanne

Thursday, January 8, 2009

Today's exciting adventure

Hi Everyone,
I got to Dana-Farber today in spite of snow, ice and freezing rain - thanks to my youngest son Andrew who provided moral support for me and drove with me into Boston. First of all, the CA 125 is down to 62 from 162 last time! This chemo is working and I am so thankful for all the prayer and for God's operating.

The wait for Dr. Berlin was about 10 minutes in the waiting room and then about 20 minutes in the exam room. This is very unusual. Then the wait upstairs for chemo was only about 15 minutes. I have waited for at least 1 hour each time I came. When I got in for the chemo, the people next to me whom I didn't meet were reading the Bible together. It was so wonderful to listen to them - they were reading the gospel of Matthew and it sounded like they were reading some passages for the first time. They marveled at Jesus' words and acts. I had brought things to do, but I just listened to their reading. It was so sweet to hear people appreciate the precious words of the Lord Jesus. It watered my spirit immensely. I wasn't sure if I should interrupt them since they were have some personal time together so I just prayed for them and drank in the sweet aroma of Christ which they filled the place with.

I had a long visit with the social worker Irene - she is very sweet and I enjoy speaking with her. Paul came and brought me a triple berry smoothie which was really tasty. When the taxol was complete, I started the carboplatin. I had a slight allergic reaction last time so they were concerned a bit but thought it should be fine. Paul went out and got me some lo mein noodles and chicken. After eating some of the meal, I suddenly got very sick- like I was going to throw up. I went to the bathroom but this didn't help and I started having trouble breathing. Turns out this was major allergic reaction to the carboplatin. Those nurses at D-F were amazing. Within seconds they had the meds, oxygen, a EKG, vitals and Dr. Berlin - and brought down the reaction. Hallelujah! Also, it turns out I had most of the carboplatin - so I don't have to miss the dose this week. In the future they have a desensitizing program where I get the carboplatin over 8-10 hours.

When I was listening to the couple today, I thought of that wonderful hymn by John Newton. I know I've posted it before, but it really was my experience today. Here's a link to the tune: http://www.hymnal.net/hymn.php?t=h&n=66&f=mid

1 How sweet the Name of Jesus sounds
In a believer's ear!
It soothes his sorrow, heals his wounds,
And drives away his fear.

2 It makes the wounded spirit whole,
And calms the troubled breast;
'Tis manna to the hungry soul,
And to the weary rest.

3 Dear Name! the Rock on which we build;
Our shield and hiding-place;
Our never-failing treasury, filled
With boundless stores of grace.

4 Jesus, our Savior, Shepherd, Friend,
Our Prophet, Priest, and King;
Our Lord, our Life, our Way, our End,
Accept the praise we bring.

5 Weak is the effort of our heart,
And cold our warmest thought;
But when we see Thee as Thou art,
We'll praise Thee as we ought.

6 Till then we would Thy love proclaim
With every fleeting breath;
And triumph in that blessed Name
Which quells the pow'r of death.

(Repeat the last two lines of each stanza)

We triumph in that blessed Name, which quells the power of death! Hallelujah!

Please pray for the next few days and for the chemo side effects - that I will be able to manage the nausea and not get too depleted. Thank you all for your faithful prayers - the stomach pain subsided a couple of days ago and yesterday I was able to go into school and work in the library - it was great! I had no pain. Thank you Lord!

Love you all -
Joanne

Monday, January 5, 2009

Update...finally

Sorry for the delay again in updating the blog - I had a rough week having eaten some fruit and vegetables (cooked) which seemed to get "stuck" (or so it felt) somewhere between my stomach and small intestine - where the stent is - I was very, very uncomfortable and could only deal with the pain by lying down and trying to sleep through it. I am going to see if I can contact the GI doctor and speak with her about some strategies for eating. The only food that seems to go down without any problem is ice cream - something I shouldn't be eating. Stephen (my son) bought me a smoothie recipe book which I am going to try - perhaps smoothies will go down like ice cream. It is somewhat discouraging to have such discomfort almost every time I eat anything. But overall I am stronger and feel better - which usually happens the last few days before the next round of chemo (which is on Wednesday). I will have another CA 125 blood test on Wednesday and will post that when I get a chance. Please pray for the effective work of the chemo, for some relief from the digestive discomfort and for unveiled fellowship with the Lord. My real need is to behold Him so I can be infused by Him - 2 Cor. 3:18 says: But we all with unveiled face, beholding and reflecting like a mirror the glory of the Lord, are being transformed into the same image from glory to glory, even as from the Lord Spirit.

The footnote for "being transformed" says: When we with unveiled face are beholding and reflecting the glory of the Lord, He infuses us with the elements of what He is and what He has done. Thus we are being transformed metabolically to have His life shape by His life power with His life essence; that is, we are being transfigured, mainly by the renewing of our mind (Rom. 12:2), into His image. Being transformed indicates that we are in the process of transformation.

Romans 12:2 says
And do not be fashioned according to this age, but be transformed by the renewing of the mind that you may prove what the will of God is, that which is good and well pleasing and perfect.


The footnotes for be transformed says:
Transformation is the inward, metabolic process in which God works to spread His divine life and nature throughout every part of our being, particularly our soul, bringing Christ and His riches into our being as our new element and causing our old, natural element to be gradually discharged. As a result, we will be transformed into His image (2 Cor. 3:18), that is, conformed to the image of the firstborn Son of God as His many brothers (8:29). Thus we will be suitable for the building up of His Body.

So, through all our trials, our real need is to behold Him that we would be transformed into the same image - but this is not the end - the purpose of this transformation is to make us suitable for the building up of His body. It doesn't end with my transformation but with His building. Years ago a dear brother wrote this hymn which was his prayer for transformation. The tune is "More", which was a popular song in the mid-1960's.

  1. More of our heart, dear Lord, we'd give You now;
    Even more ground to You, Lord, we'd allow.
    All that distracts us we'd despise,
    All that draws away our eyes—
    Lord, do fill our vision
    'Til the morning star has risen!
    We would count all things loss, but Jesus gain;
    Our inward parts cry out for You to reign.
    Worthy You are our heart to claim—
    Come, engrave on us Your name,
    We would love You, Jesus, more.

  2. Less we would argue, Lord, and go our way;
    More we would say "Amen" to what You say.
    Grant us a walk to You conformed,
    'Til our living is transformed.
    We adore You, Jesus—
    May a pure love for You seize us.
    Any unwillingness, Lord, quickly slay;
    Even by faith we open all the way—
    Rising to heights of love unknown,
    Christ our destiny alone,
    We would love You, Jesus, more!

Oh, Lord, may a pure love for You seize us!

Thank you all for standing with me these days. I apologize for not being so available for phone calls- when I am resting, I try to not answer the phone. But don't give up and please know that I am upheld by your care and prayers.

Love,
Joanne